Clarification of Past Health Status, Research Changes My Opinions

This was posted as an update on an old blog post that was getting increased traffic to clarify something I thought then I believe was incorrect, but the best conclusion with the information I had.

From time to time there is some interest in different older posts, so I want to make a statement clarifying what my journey of research has revealed. I would like to update a couple of wrong pieces of information about myself which were my understanding years ago when this was written. What I have come to understand is most healthcare professionals know nothing about many subjects and are faking it. I knew I was different when very young and tried to get answers as to why starting in the 1970s, none were found, just my being told I was normal when I knew that was not true.

Part of my story involves being a DES Daughter which caused immune system dysfunction, deformities of the reproductive system, abnormalties of the bone cells and growth of them, brain lateralization issues, partial androgenization in the female brains and much more. They only allowed the public to know about a couple of these problems, the deformities including abnormal vaginal/cervical tissue/deformed uteruses and the vaginal cancer it causes. They said almost nothing about problems the males have.

I have ME/cfs which is most likely secondary to being exposed to DES in utero. There was a massive decades long cover up of the problems DES, diethylstilbestrol caused us including lawyers being paid off and fake newspaper articles, you know just like what goes on now. We all waited almost holding our breathe for decades wondering if the next time we had a pelvic exam cancer would be revealed. Now most physicians and nurse practitioners know nothing about it causing more trauma, The Silent Trauma of DES. We also had painful procedures we had to pay for and it is now known were completely unnecessary.

The drug companies were always corrupt and so was the FDA. Then on to ME/cfs, Myalgic Encephalomyelitis/chronic fatigue syndrome, given a joke name and pooh-poohed in an attempt to psychiatrically pathologize those who have suffered from it often for decades. The FDA, CDC and NIH are all corrupt as hell and the med schools are owned by the drug companies. Recently, finally through private funding done by those who often have relatives or friends affected by the illness some research has given us some clues, our Krebb's cycles are broken. Below I have included a chart of the Krebbs cycle to which I have added a mythical enzyme, vaginase due to my decades of saying, "They think our vaginas are making us crazy." The weird sense of humor is part of another correction of a wrong thing I will address shortly.

My weird sense of humor is a clue to why I am different and have problems being targeted by scum, but keep on truth telling.

We do not transport calcium into at least some cells of the immune system normally, but most likely it is a whole body problem.

The discovery of abnormal calcium immune system cells affects people with CFS in three main areas of the body where CFS-related pain usually occurs — the brain and spinal cord, the pancreas and the stomach.
“This is incredibly important because calcium is required for a huge range of functions within the cell, in every tissue, in every organ system in the body,” Prof Staines told Seven and Nine News on the Gold Coast.

There are cognitive issues when ME/cfs flares up. I spent my childhood on an IQ roller coaster, up and down 30 points and becoming dyslexic temporarily with flare ups. I tested myself and documented this. No help from anyone, I had to figure everything out for myself.
 
Bad decisions made at two homeless shelters I have been forced to stay in due to the corruption and dysfunction of my country and the horrible treatment of the disabled, oh and let me mention the INJUSTICE have caused me to become very ill. Requests for accommodation secondary to the ADA were denied and it was not the first time. Pathogen insanity rules in homeless shelters while those who run them could care less those with immune system issues get very ill. After two years of being blocked when I tried to rent apartments in Boise while being gangstalked at the Interfaith Sanctuary and harassed, gangstalked by bad cops and employees of other agencies I finally found a rental. I did not believe due to the cruelty of this city that even the very day I was to get the key they were going to rent to me. I have been gangstalked on the property including noise campaigns, massive lies, strange street theater and more.

My claim that I was an alcoholic in the past was based on my becoming very intoxicated with one or two drinks and then having behavioral issues like a highly intoxicated person. Anyone who knows about ME/cfs is aware that with this illness is alcohol intolerance due to the dysfunction of the mitochondria which don't just make energy they also tag toxins with sulphur so the body can detect and dump them. That is why we often have chemical sensitivities which is a maligned disability that contributed to my being given a notice to leave an alcohol, drug and bedbug ridden hell hole. I know, who could resist living there? What I am saying is I was perfectly willing to be an alcoholic. Many alcoholics told me they did no think I was one due to recovery being so damn easy for me, they were right, instead it's alcohol intolerance. In these low income housing situations the person who does not smoke, do drugs, doesn't drink, tries to do what they can to be healthy is forced to live in the sins of others including forced cigarette smoking on properties which have federal regulations that there can be no smoking in the building or close to it. Homeless shelters force people who do not smoke to breathe large amounts of second hand smoke. One reason targets of gangstalking are forced into homelessness is to deteriorate their health.

I am addicted to narcotics which was the main treatment for the pain due to ME/cfs back in the time when we knew absolutely nothing about it. That was not fun. I watched as drug companies put out new pain meds and said they were not narcotics, then patients got addicted and I argued with doctors who would not listen to logic or apparently even read the pathophysiology. Then a neurologist got upset with me for asking questions and pointing out the overdose of the so called non-narcotic pain med I was on was treated by Narcan. I got addicted, then when forced to finally face the truth he abruptly withdrew the med from the patients he screwed over. This is when I learned to be the one who decides if I take a med or not. I often know more than they do and if I don't will shortly. I had to become my own healthcare provider anyway as most physicians willfully know nothing about ME/cfs. I take no medications and recently was in severe pain caused by the harassment and stress, noise campaigns and resulting lack of sleep. It was horrible but I used herbs for the pain and just had to live through it. If I am in charge it does not happen, it is the sins of others I am forced to deal with which cause it.

Then there was the autism claim to address. Aspergers has been replaced by a scale, a continuum of autism, it's a defunct diagnosis and we all know anything one can remove from the DSM 5 is helpful. The issue I actually have does have some cross over features that look like autism. I spent quite a bit of time and money in the past trying to understand what was going on with me, going to professionals who either did not know about these traits or perhaps did not get that I have them. The getting it part for those of us who have this issue is hard for ourselves as we never imagine we are the ones.

I have the personality characteristics of a highly intelligent or gifted adult, right down the line, every damn one of them glaring like a neon sign. Check it out here, here, here. With a flare up of the ME/cfs my IQ can drop 30 points and I knew this two decades before the research came out showing this happens to many of us. When I reported it they thought my vagina was making me crazy because they tested me and my IQ was normal, not low as I reported. I once went to an optometrist and told him my eyesight had gotten horribly bad, he tested me and said it was 20/20. I then said that made no sense and he explained that just like the pilots who come in and tell him the same thing my eyesight had been 20/15 before and then when it became more normal I thought I was going blind. The conjunctivitis I have right now and the many other episodes of it I have had while homeless have damaged my eyesight.

There are specific personality traits of those with high IQs that cause us problems, can lead us to become serial whistleblowers, to argue about things that are wrong, to try and change things courageously, to battle against injustice and we are also very sensitive people.

Here are the characteristics of people with high IQs that cause the most trouble for me.

• Highly developed morals and ethics and early concern for moral and existential issues
• Unusual and early insight into social and moral issues
• A need for the world to be logical and fair
• Argumentativeness
• Highly idiosyncratic interpretations of events
• An awareness of detail
• An unusual intensity and depth of feeling
• A high degree of emotional sensitivity
• Weird sense of humor others don't get

What psychologists and others who are asked by clients with high IQs why they are different should tell them is there is nothing wrong with you, but the reason you are different will probably cause you some problems in your life. Some of the characteristics look like autism and other diagnoses that do not apply.

Welcome to America where the disabled, elderly and the unfortunate are treated as disposable people. I have no health care at this point and if I did they wouldn't have one damn clue so the misdiagnoses those with ME/cfs are familiar with would begin along with the attempts to give me meds or treatments that would make me sicker.

My country did this to me and then withheld the research, people should be in prison for this. There are millions of us. Here in Boise Idaho, Mayor Bieter brought in lots of immigrants and filled up the low income housing, some of us are going to die without housing. Not one damn is given. I have nothing against the immigrants themselves who are just trying to survive tragedies most likely brought on them by the United States and the corrupt CIA, NGOs, military and corporate evil we bring to the world. The mayor was kissing butt for some favor, I don't know what, yet. He has the police harassing the homeless unmercifully in Boise Idaho to run us out of the city for corporate interests, a sports arena. Similar stories play out all over the country.


As time goes on I expect to learn more, but at this point in time and at the level of research we have this is what I understand.

"Dissidents" Organized by the Oligarchy are not Dissidants, but Instead Sheep, Where in the Hell Have They Been All These Decades?

Debbie Lusignan, the Sane Progressive is brilliant.



Where were these people who now want to be called dissidents when I was in Nome Alaska battling the police who did not arrested the men who raped women in the remote villages if the women said not to. Those women lived in a subsistence situation in a tiny village of course they would say not to. 

Where were these women when I reported the incompetence and dangerous conditions at the hospital in Nome Alaska to incompetent agencies including the IHS, then was workplace bullied on a massive scale. Where were they when I was subjected to the corrupt court system that has been used on the Native people in that region for decades? Where were they when I was overwhelmed by the weigh of the burden of the conditions until I had severe PTSD? Where were they when my ME/cfs which was probably caused by DES got so severe after the PTSD developed that I looked like I had dementia? Where are they even now that we can't get health care or much research? Where the fuck were all of you "dissidents" since you are so damn supportive of women, where in hell were you?

Where were the women of the United States when rape kits all over the country were not tested? Then we had LEOs saying crazy things to distract from this obvious disrespect of women. Why did you not march about that? I did and it takes courage to speak up, especially when you know there will be retaliation. It takes no courage to join a large march. 

Where were they when I reported a prostitution ring in Homer Alaska and a lot more but the Homer Police rather than put what I said in a report simply wrote up that I was crazy? (This BTW is the first thing all bullies who are trying to cover up the truth do). One cop was outrage because I told them they were advertising on Craigslist, that is how ridiculous these idiots are.

Where were these women when the millions of us who are DES daughters needed help with the medical costs, some research to tell the whole truth about the damage done to our bodies by drug companies looking to make massive amounts of money and the FDA lied for them. Where were they when doctors did cryosurgery and laser surgery which was not necessary and only filled us with scar tissue, tortured us and created huge financial burdens? Where were these women such as Gloria Steinham who was around when the story of DES broke when the false articles were put in the newspapers that we could not sue the drug companies and law firms such as Belli, Ashe and Koulos screwed clients such as myself (Yes Melvin Belli and BTW NOW referred me to them Gloria Steinham). I remember you John Kalin and how you sent me a letter making me my own attorney the day before an important hearing. How much did they pay you?

Where were these women as those who suffer from ME/cfs are still treated like garbage by the medical community, the NIH and the CDC after all these decades? Where the hell are you, most of us who have ME/cfs are women and they treat us like our vaginas are making us crazy. Where in the fuck have you been?

Where are you when it comes to women's rights all over the world, sexual slavery and equality? You were dead silent and have only begun to march because of manipulations of the oligarchy. The reason is you are not real, you are a reality show yourselves.

PRESIDENT OBAMA DON’T BACK AWAY FROM A DEAL WITH THE PHARMACEUTICAL INDUSTRY, RUN!

The myth that the pharmaceutical industry has our best interest in mind when they are developing and marketing drugs has been a contentious subject for me for years. While it is true there are medications which do save lives, increase the quality of life, decrease pain, improve suffering from psychiatric illnesses and much more it is also true a huge number of medications cause us a great deal of harm and are promoted by drug companies to make huge profits, knowingly. As Dr. Weil says, new diagnoses are even designed to help promote them http://www.huffingtonpost.com/andrew-weil-md/disease-mongering-good-fo_b_275616.html. Now they say they are getting ready to launch a new campaign showing how much they want health care reform based on the so called deal with President Obama. Translated this means they want to be involved in the process of health care reform so they can protect their ability to continue to make huge profits. It seems the White House has been negotiating a back door deal

An article on 8/13/09 written by Ryan Grim discusses that a memo was obtained by the Huffington Post listing a deal between the white house and big Pharma:

…confirms that the White House and the pharmaceutical lobby secretly agreed to precisely the sort of wide-ranging deal that both parties have been denying over the past week.

The memo, which according to a knowledgeable health care lobbyist was prepared by a person directly involved in the negotiations, lists exactly what the White House gave up, and what it got in return.

It says the White House agreed to oppose any congressional efforts to use the government's leverage to bargain for lower drug prices or import drugs from Canada -- and also agreed not to pursue Medicare rebates or shift some drugs from Medicare Part B to Medicare Part D, which would cost Big Pharma billions in reduced reimbursements.

In exchange, the Pharmaceutical Researchers and Manufacturers Association (PhRMA) agreed to cut $80 billion in projected costs to taxpayers and senior citizens over ten years. Or, as the memo says: "Commitment of up to $80 billion, but not more than $80 billion."

In order to learn more about its origin, HuffPost agreed not to reveal the name of the lobbyist who originally received it. "That is the PhRMA deal," said the lobbyist of the outline. He then clarified, "It was the PhRMA deal.” Who knows what will happen now that there is so much outrage about the deal not just from congress, but from people all over the country who know better than to trust these pharmaceutical companies who have little conscience when it comes to making money.


Representatives from both the White House and PhRMA, shown the outline, adamantly denied that it reflected reality. PhRMA senior vice president Ken Johnson said that the outline "is simply not accurate." "This memo isn't accurate and does not reflect the agreement with the drug companies," said White House spokesman Reid Cherlin.

Stories in the Los Angeles Times and the New York Times last week indicated that the administration was confirming that such a deal had been made. My head is spinning.

Since then there have been a lot of critics on Capitol Hill and in the general public. Is this really reform? I have a committee in my own head which was built on years of watching as big pharma make deals to screw the public over and over. All the members of the committee are screaming. Whatever happened to protecting the citizens of this country from being harmed by unscrupulous corporations?  We have a long history of not protecting the public from pharmaceutical companies.

I give you Diethylstilbestrol aka DES:

1941-1947-Harvard Medical School obstetricians George and Olive Smith advocate the use of DES to prevent miscarriages and enhance pregnancies. No tests are run on pregnant animals. No tests are done on an unexposed, comparison group of women.

1947- FDA approves DES for use during pregnancy. DES is inexpensive to produce and profitable. It is never patented, so any manufacturer can make and bottle DES. DES use spreads.

1947- USA Dispensatory; a pharmacology encyclopedia, states, in reference to DES, "To date no national catastrophe has been recognized, but it is perhaps too early for any deleterious effect on the incidence of carcinoma of the female generative tract or breast to appear."

1947-1971-DES becomes a wonder drug. It is prescribed to an estimated 5 million pregnant U.S. women and hundreds of thousands more through- out the world. DES is used In some European countries until the mid '80s.

■A popular DES regimen of 125 mg per day, recommended in the PDR, is the estrogenic equivalent of 700 birth control pills per day. Some women are given as much as 250 mg of DES per day.



1950’s

■250 drug companies will eventually manufacture and market DES under 326 names. A brochure for pharmaceutical sales reps reads, "Deal yourself in . . . Play a winning hand. . . Diethylstilbestrol. . . Turn on the stream-and discover how good business

really is."

1953-Dieckmann study at the University of Chicago concludes that DES "has no beneficial effect whatsoever on the prevention of miscarriage." Approximately 800 pregnant women are given DES and 800 pregnant women are given a placebo. The women who took DES have more miscarriages and lower-weight babies.

1954-Livestock industry begins to use DES in animal feed to fatten veal, chickens, and cattle. By 1957, an estimated three out of every four hamburgers, steaks, and roasts on American dinner tables comes from livestock given DES-laced feed.

1959-Mink livestock are stripped of fur and rendered sterile after eating chickens with DES neck pellets. Mink farmers sue the federal government.

1959-DES is banned in chickens and Iambs but not in pregnant women.



1960’s

1962-FDA declares DES ineffective for pregnancy.

■DES becomes the contraceptive "morning-after pill," distributed in college clinics throughout the U.S. Many young women prescribed the five-day regimen have already been exposed to DES in utero.

■DES is prescribed to tall teenage girls in Australia to stunt growth.

1964-Charles Dodds is knighted by the Queen of England for his pivotal role in medical research.



1970’s

1971-Alarming occurrence of vaginal cancer cases in young women, ages 14-22, puts the medical community on alert. The rare cancer had not been seen in women so young. Clear cell cancer of the vagina or cervix can spread to the lungs, liver, and bone. Despite radical treatment removing the vagina, uterus, and other reproductive organs, some of the girls do not survive.

■New England journal of Medicine publishes seminal report establishing link between DES and clear cell cancer in daughters of women prescribed DES. (Herbst, et al.)

■Surgeon General warns against DES use during pregnancy, but DES is not banned.

■Physician Arthur Herbst establishes Registry for Research on Hormonal Carcinogenesis, an international record of clear cell cancer cases. DES daughters have a one in 1000 chance of developing clear cell cancer of the vagina or cervix. They are at least 100 times at greater risk for developing the cancer compared to a young woman not exposed to DES.

■DES explodes into national view. Newspapers call DES The Time Bomb Drug. Wall Street journal headline reads Stalking a Killer: How Cancer in Women Was Linked to a Drug Their Mothers Took.

■Controversy surfaces as physicians, researchers, and pharmaceutical industry question validity of evidence linking DES to cancer and reproductive tract injuries.

■DES earns notoriety as the first tranplacental carcinogen. First proof that an estrogen can cause cancer; first proof that an estrogen can cause reproductive anomalies; and evidence of a prenatal chemical exposure with a decades-long latency.

■DES is used for dozens of treatments over the next decades, including: hormone replacement treatment, lactation suppressant, breast and prostate cancer treatment, morning-after pill, treatment of acne and gynecological disorders, for transsexuals preparing for sex change, to stunt or increase height in teenage girls and boys, and as growth stimulator in livestock.

1974-Wall Street journal article reports 11,000 U.S. prescriptions were written for DES in 1974 "to guard
against miscarriage," despite 1971 FDA warning.

1975-National Cancer Institute funds the DES- Adenosis study, to follow medical conditions in DES daughters, at five major medical centers in the U.S.

1975-Scientists are able to cause developmental abnormalities in male mice exposed to DES in utero, suggesting laboratory studies may be a predictor of DES effects in humans. A 1980 study in female mice shows similar results. (McLachlan)

1975-Dutch doctors are warned not to prescribe DES during pregnancy, after an estimated 440,000 are exposed. DES prescriptions stop in France in 1977 after an estimated 150,000-450,000 are exposed. DES is prescribed to pregnant women in Spain until 1980, Italy until 1981, Hungary until 1983. Worldwide, DES was prescribed most extensively in the U.S., France, The Netherlands, Canada, and Australia. Dozens of other countries show record of DES use; estimates of use are based on pharmaceutical sales records, physicians' recall, and number of registered cases of clear cell cancer.

1976-Study of DES sons shows 4x greater prevalence of epididymal cysts and hypoplastic testes in exposed men, and more semen disorders. (Gill) A 1984 study on DES sons finds no significant differences between exposed and unexposed men. (Leary, et al.) A 1995 study shows increased genital problems in DES sons. (Wilcox)

1978-Study reports abnormalities in size and shape of uterus in DES daughters, causing pregnancy loss. Daughters with lower reproductive tract structural abnormalities are more likely to have upper genital tract changes. (Kaufman)

1978-DES Action, a national educational organization for DES-exposed people, is founded.

1978-National Cancer Institute publishes a report on DES after a federal task force investigates DES injuries. Surgeon General sends letter to over 400,000 U.S. physicians to recommend notification of patients if they were prescribed DES. No national registry, or program to notify people of exposure, is established.



1980’s

1988-A study on autoimmune impairment among DES-exposed people shows higher risk for autoimmune diseases. (Noller, et al.)

1988-A study shows 33% infertility in exposed daughters compared to 14% in unexposed. (Senekjian)

1989-European DES Cancer Network is founded.



1990’s

■An estimated 50% of exposed individuals remain unaware of their DES exposure. Researchers continue to find evidence of reproductive anomalies, cancers, possible autoimmune disorders, and possible skeletal changes in DES-exposed offspring. Recurrences of clear cell cancer in DES daughters raise concerns. New cases of clear cell cancer are reported in DES daughters in their '40s.

■DES attracts more media interest. Headlines read: Adult Years Bring New Afflictions for DES "Babies" (New York Times); You Could Be One of an Estimated 75,000 British DES Daughters (London Times); Diagnosis Meant Fear, Humiliation (USA Today); DES Twin Sold in Mexico (Denver Post); Banned Drug DES Could Haunt Children of Mothers Who Took It (Corpus Christi Times); Suit Filed for DES Daughters (Cleveland Plain Dealer); The Shocking Story of DES Sons (McCall's); A Private Pain and a Public Healing (Los Angeles Times); Manufacturers Criminally Accountable (USA Today); DES Nightmare for Millions (Gannett Times Union); DES Daughters and Children (Washington Post); Mother and Child (New York Times).

1991-DES consumer groups launch national campaign to revive flagging DES research and gain support on Capitol Hill.

1991-European Commission survey reports that DES was prescribed to pregnant women in Ireland, UK, Denmark, The Netherlands, Germany, Belgium, France, Spain, Portugal, Italy, Norway, Finland, Austria, Switzerland, Hungary, and Czechoslovakia. Personal correspondence cites DES use in Poland, USSR, and China. Other reports cite DES use in New Zealand, Mexico, Brazil, Peru, Costa Rica, Kenya, Rwanda, Uganda, Zaire, India, Asia.

1991-Study reports eating disorders and weight loss in DES daughters at 4x higher rate compared to unexposed women. (Gustavson)

1992-A research review shows DES daughters are more likely than unexposed women to have ectopic pregnancy (9x), miscarriage (2x), and premature delivery (5x). The risk for a DES daughter's pregnancy to not make it to full term is 3x greater than for an unexposed woman, and 5x greater if she has a genital tract abnormality. (Swan)

1992-Congresswoman Louise Slaughter and Senator Tom Harkin introduce the DES Education and Research Amendment, the first federal legislation for DES research.

1992-NCI convenes the first scientific conference on DES: Long Term Effects of Exposure to Diethylstilbestrol. Advocates, researchers, clinicians, and policy makers set a new model of multidisciplinary collaboration. Research recommendations are made in epidemiology, basic science, clear cell cancer, pregnancy outcomes, and education outreach.

1992-The Los Angeles Times quotes a pharmaceutical company spokesperson: "Eli Lilly & Co. believes that it acted responsibly in the development and marketing of DES, and we will continue to vigorously defend that position."

1992-DES legislation is passed. President Bush signs the DES Education and Research Amendment into law. NCI establishes the DES Combined Cohort Studies (DCCS) to update existing cohorts and investigate long-term health in the DES-exposed.

1993-A study of DES mothers confirms a 30% increased incidence in breast cancer, compared to unexposed women. (Colton)

1994-NIEHS holds Estrogens and Environment III conference. Conference concludes that the reproductive injuries found in wildlife and laboratory animals parallel those seen in DES-exposed humans, suggesting that chemicals in the environment may mimic estrogens and harm the reproductive system of second-generation offspring.

1994-less than 50% of 3600 respondents to a California health survey have ever heard of DES. (Wingard)

1995-NCI renews five-year contract for the largest investigation of long-term health of DES-exposed daughters, mothers, and sons.

1995-Study on DES sons reports three times greater prevalence of urogenital abnormalities, but no decrease in fertility or impairment of sexual functioning. (Wilcox)

1995-DES education study reports that 91% of surveyed physicians know DES increases risk for clear cell cancer, but that only 39% know DES increases incidence of ectopic pregnancies in DES daughters. (Wingard)

1995-DES Third Generation Network is formed.

1998-Cancer biologists question whether DES affects gene regulation and expression, or if DES may disrupt cells' DNA and cause genetic change. (Sassoon)

1998-NCI study of DES daughters finds no increased risk for any cancers, other than clear cell cancer, although there is a suggestion of a possible increase in breast cancer risk among DES daughters over age 40. (Hatch)

1998-A federal project acts to evaluate 62,000 chemicals beyond their carcinogenicity to include potential for hormonal activity. The new direction is driven in part by the lessons of DES.

1998-DES advocates win renewed federal legislation. President Clinton signs the DES Reauthorization bill and Congress establishes the first national DES education program, to be carried out by the CDC.

1999-NCI holds second scientific conference on DES research: Current Knowledge, Future Direction. Recommendations are made for basic research, clinical/epidemiological research, and education and outreach.

■Reports on preliminary findings include a Belgian study citing evidence of DES in the bones of DES-exposed people over age 50, and a NY ophthalmologist suggesting a link between DES exposure and nearsightedness. Researchers stress the need for further research.

1999-Arthur Herbst emphasizes there is no age limit for the development of clear cell cancer. DES daughters should be monitored past age 40.

1999-U.S. meat shipment is seized by Swiss authorities after tests show traces of DES.


2000’s

2000-USDA begins testing U.S. beef for DES, for the first time since 1991.

2000-Estrogen, used in menopausal treatments and birth control pills, is rated a cancer-causing substance by the U.S. National Toxicology Program.

2000-NCI study confirms increased incidence of ectopic pregnancy, premature delivery, and miscarriage in DES daughters. (Kaufman, et al.)

2000-NCI study finds DES daughters are two times more likely to suffer infertility than unexposed women. (Palmer, Hatch, et al.)

■A Dutch study reports a 3x-5x increase in cervical cancer among DES daughters, compared to unexposed
women. (Verloop, et al.)

■Increased incidence of reproductive tract tumors with no reduced fertility is found in male descendants of mice given to DES (grandson mice). A parallel study two years earlier on granddaughter mice showed similar results. Investigator concludes that in mice, "Increased susceptibililty for tumors is transmitted from the DES 'grandmothers' to subsequent generations." (Newbold, et al.)

2000-NCI renews five-year contract for DES research on long-term health effects.

2001-NCI study confirms earlier findings of an increased risk of breast cancer in DES mothers.

(Titus-Ernstoft)

2001-DES consumer organizations mark the 30th-year anniversary of the link between in utero DES exposure and clear cell cancer.

2001-CDC launches the first national public education campaign to educate public and physicians about DES.

Today

■DES products are no longer on the market in the US. In some countries DES is still used as a treatment for prostate cancer. In others, it is found in vaginal creams and may still be bought over the counter for use during pregnancy.

■Clear cell cancer cases in DES-exposed women continue to be reported to the clear cell cancer registry at the University of Chicago.

■DES-exposed people show resiliency in coping with DES legacy, despite continuing health problems, reproductive dysfunctions, and concerns about the future.

■DES consumer organizations, led by DES mothers, daughters, and sons, influence public health education and social policy.

■Many people, worldwide, remain unaware of their prenatal exposure to DES; others are just learning of their exposure to DES.

■Urgent need remains for long-term investigation of health of DES daughters, sons, mothers, and grandchildren.

■DES-exposed people and DES consumer groups continue to advocate for public education and the promise of lifelong follow-up research.

■With continued efforts by DES advocates, educators, and policy makers, a new wave of studies will provide information on long-term health of the DES exposed, and offer an important scientific model about hormone action.

To this day, none of the 267 pharmaceutical companies who produced and distributed DES has accepted any responsibility for the DES tragedy, and all continue to claim that DES causes no health problems. Eli Lilly, the largest manufacturer, has been a defendant in most of the lawsuits brought by victims of DES-related cancer, infertility, and birth defects. I am just one of the thousands exposed in utero to DES. We have had to carry the burden of the extra health care costs and anxiety about our health with no responsibility being taken by the pharmaceutical industry. The doctor who prescribe my mother DES long after it was published in medical journals it did not prevent miscarriage and had huge problems had a mysterious fire and all of his records were burned. I was involved in a group lawsuit against Eli Lilly a long time ago out of Melvin Belli‘s office. Then the supreme court set a precident that we could only sue the drug companies if we had cancer, significant birth defects or infertility issues. They dropped our lawsuit like a hot potato they could no longer smell money.  My mother was devastated.

Next post will be on pharmaceutical industry and addiction for profit.

http://www.latimes.com/news/nationworld/nation/la-na-health-pharma14-2009aug14,0,5896090.story

http://www.huffingtonpost.com/2009/08/13/internal-memo-confirms-bi_n_258285.html
DES Timeline from www.douglasandlondon.com






















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