MEaction's list of demands.
Shoes were placed in many cities all over the world to represent those who were too ill to participate in the #MillionsMissing protest for ME/cfs on September 27th 2016.
As far as I know I'm the only sufferer of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome who says they think our vaginas are making us crazy when speaking of the uniformed and non-self-educating medical community. There was a woman in London, Janet Eastham who decided to remove her clothing during the world wide protest of lack of medical education, lack of funding and lack of treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on September 27th. She held up a sign that said, "You can't ignore ME now." This lady is a journalist. Believe me I understand being pissed off enough at NIH, HHS, CDC, Providence Hospital in Anchorage Alaska, the federally funded state run clinics of incompetence in Alaska or St. Luke's Hospital and Terry
Below is one of Janet Eastham's Tweets about the protest. She has more pictures and is now bedbound due to post exertional malaise. We crash after exertion, but I am unable to do what I need to rest as I'm homeless. Just before becoming homeless I had for six years very slowly increased my tolerance for activity and was on the Wahl's Protocol doing much better, Alaska fucked that up. I really think we should have large protests of large numbers of naked women carrying banners that say, Can You See ME Now. It does sound rather chilly however.
I stood naked outside the LDN Department of Health during the #MillionsMissing protest to make this "invisible illness" #MyalgicE VISIBLE pic.twitter.com/PrZj441q3P— Janet (@JanetEastham) September 28, 2016
Leonard Jason discusses the symptoms of ME/cfs. We are as ill as people who are given much help and treatment for their severe health issues, but instead we are abused, ignored and left to fend for ourselves. I have this illness, was in USDA RD Senior and Disabled housing and was run out of it by two corrupt corporations, a psychopathic cop (and his sick family) and officials in the state of Alaska for political reasons. The USDA RD is rotten to the core all the way to the top and so is Alaska. A year ago last August I was harassed before and during the Arctic Conference and left Alaska for my safety, in other words they ran me out. We are very ill, our lives are taken from us, die young and get no medical treatment. Hell I can't even get them to do the testing I need. The emergency rooms treat homeless people like throw away garbage, add having ME/cfs to that and I get horrendous treatment. One doctor in an ER here was not abusive but instead sent me to a clinic where they have residents so they could learn about ME/cfs and interstitial cystitis as I have that too, also fun while homeless. The clinic of incompetence here fired me for pointing out the misdiagnoses and more. There is a clinic of incompetence for the poor and homeless almost everywhere.
This staff said I was rude to everyone in the shelter, sorry little bully-man, I have ME/cfs where would I get the energy to be rude to EVERYONE in that hellhole? I really don't talk to lots of the people which is how I normally am so his complaint is totally illogical. He then went on to say I treated everyone like THEY were germophobes because he is not too bright and got his slander backwards, perhaps the word backassards would fit better here. This man was screaming loudly at me and very angry, but I often say snarky things like, "The non-profit industrial complex tried to kill me but I lived." LOL, which is actually true. It's a nightmare in homeless land.
I do protect myself as best I can by hand washing and
So this ignorant little man at the shelter bullied me because he is too slow to get my humor and thinks my vagina is making me imagine there is something wrong with my immune system, he could kiss my ass, but I'd be afraid of catching a virus from him of course. Who the hell do I think I am anyway displaying snarkiness and intelligence the way I do. Those two things are my survival skills, one keeps me alive and the other is a coping mechanism. I spent decades keeping critically ill people from getting infections, I kept many from dying and he knows nada and is a bully. But then one can't have a homeless shelter without bullies and psychopaths running it, right Dr. Zimbardo?
Last winter I was so ill I thought I might die. On top of everything else those of us who do not smoke are forced to breath second hand cigarette smoke. Then add all the bleach, laundry detergent and other chemicals on a daily basis with the dysfunctional mitochondria, but also causing lung damage.